Family & Individual Support Groups

One of the goals of the Epilepsy Foundation of Rochester-Syracuse-Binghamton is to help individuals and their families with epilepsy and related disabilities, and those dealing with traumatic brain injuries, reach their potential. Support groups provide opportunities for sharing feelings, for problem solving, and for networking with individuals in similar circumstances. Please take a look at the current support groups and schedules to find the group that best meets your needs.

BINGHAMTON SUPPORT GROUPS

Adult Support Group
Wilson Memorial Hospital, Johnson City, NY
Wilson Conference Room 5A, 4th Floor, Piccano Building
7:00-8:00 pm

2009 Meeting Dates: Jan 21st -- Post Holiday Pot Luck Dinner, Feb 18th, March 18th, April 15th, May 20th, June 17th, July 15th, Sept 16th, Oct 21st, Nov 18th

Summer Picnic at Highland Park: August 19, 2009 at 6 pm
Holiday Dinner, location TBD: December 6, 2009 at 4 pm

For additional information, please call (877) 214-7715.

ROCHESTER GROUPS
Click here for a map to our Rochester office.

Interested in a support group in Wayne County?
Contact Mike Radell via e-mail or by phone at (800) 724-7930 x2702.

Teen Group
Next Meeting: Jan 23rd
5:00 pizza, 5:30 - 6:30 meeting

Call Mike Radell at (800) 724-7930 for more details.

Click here for our Teens at EF page.

Adult Support Group
6:00 pm pizza, 6:30 - 7:30 pm meeting
Note date and time change for January meeting

2009 Meeting Dates: Jan 8th -- Luncheon meeting from Noon to 1:00 pm, Feb 5th, Mar 5th, April 2nd, May 7th, June 4th, July 2nd, Aug 6th, Sept 3rd, Oct 1st, Nov 5th, Dec 3rd -- 1st Annual Adult Support Group Holiday Party

This group enables adults to come together to share their experience and knowledge about living with epilepsy. Speakers on topics will be provided at some meetings, and other meetings will be open forums with an opportunity for personal sharing and networking. The group meets at the Epilepsy Foundation's main office at 1650 South Avenue, Suite 300, Rochester, NY.

Call Robin Didas-Mott, social worker, for more information (585) 442-4430, ext 2708.

Parent and Family Network (PFN)
6:00 pm pizza, 6:30 - 7:30 pm meeting

2009 Meeting Dates: Jan 9th, Feb 12th, March 12th, April 9th, May 14th, June, July, Aug -- no meetings, Sept 10th, Oct 8th, Nov 12th, Dec -- Holiday Party TBA

PFN is a support group for the whole family with separate activities for both parents and children. Questions? Call or e-mail Mike Radell at (585) 442-4430, ext 2702.

Integration Skills for Young Adults with Brain Injury
6:30pm - 8:00 pm
Dec. 22

Call (585) 442-4430 for 2009 meeting dates and times.

Challenges related to living with a brain injury often result in an upset of social skills needed to successful integrate into the community. This group provides a forum for younger adults (generally 18 - 35 years) who have experienced brain injuries to learn the social skills needed to be safe and successful adults in the community. It also provides participants the opportunity to learn more about themselves and their interaction styles. This group will provide encouragement to practice strategies for managing life. 

The group meets at the Epilepsy Foundation's main office at 1650 South Avenue, Suite 300, Rochester, NY. Although held at the Epilepsy Foundation,this group is free and open to anyone in the community with a brain injury.

For more information or to register, call the Epilepsy Foundation at (585) 442-4430.

SYRACUSE SUPPORT GROUPS

Parent Family Network/Adult Support Group
6:00 pm pizza, 6:30 - 7:30 pm meeting
Last Tuesday of the month (except where noted)

2009 Meeting Dates: Jan 27, Feb 24, March 31, April 28, May 19*, June 30, July/August -- Summer Picnic TBA, Sept 29, Oct 27, No 17, Dec -- Holiday Party TBA

The Syracuse Office of the Epilepsy Foundation of Rochester-Syracuse-Binghamton hosts a Parent Family Network each month for individuals and family members affected by epilepsy and seizure disorders.  All are welcome. Unless otherwise noted, all meetings will be held at our Syracuse Office, located at 1045 James Street, Suite 270, Syracuse, NY 13203.

Please call (315) 477-9777 for more details.

Page Updated: December 29, 2008