Show Your Commitment. Sign the Petition!
The Epilepsy Foundation is leading the fight to increase funding for research and programs, stop discrimination and improve access to care.
In 2009, a new President, 535 members of Congress and nearly 10,000 state legislators will take office. By signing our petition, you can help us persuade them to support policies that improve the lives of the three million American families affected by epilepsy.
More than 3 million Americans have epilepsy (seizures) and 200,000 new cases are diagnosed yearly. For most, there is no cure and many with epilepsy face discrimination and difficulty accessing care.
I strongly urge policymakers to support efforts that end discrimination, improve access to care programs, and increase funding for epilepsy research and programs. Click here to Sign!
Thank You - For 25 Years
Twenty-five years ago a small group of individuals with little more than an idea, , a desire and an overwhelming sense of community decided to form the Epilepsy Association of Greater Boston, Inc. to help families, friends and patients coping with epilepsy. Last night we stood, 25 years later, and honored those same individuals for their leadership, talent and commitment to the epilepsy community.
The tireless efforts of our founders and volunteers have enabled the Foundation to initiate and lead the way on in developing needed services, educational programs, advocacy and research. The Foundation’s accomplishments are numerous. Highlights include expansion of services into Rhode Island in 1993, the development of effective information and referral services, cultivation of specialized support groups for individuals and family members. Epilepsy awareness and education programs continue to be conducted in both states and brought into local schools and businesses, and recently extended toward psychologists, social workers, and counselors. Out advocacy programs empower individuals and target legislation at all levels of government to ensure our constituents have a voice and are heard. This year, Camp Wee-Kan-Tu celebrated its 10th Anniversary, having served over 500 children with epilepsy.
Click here for the rest of the speech.
Pictures of the evening coming soon.
Epilepsy Advocate Event Portland, ME
Join Dr. Heidi Henninger and other for a free EpilepsyAdvocate.com seminar covering a wide range of topics all related to Epilepsy in Portland Maine.
November 18th, 2008
Portland Marriott at Sable Oaks
200 Sable Oaks Drive
Portland, ME 04106
Call 866-865-7305 or go to www.epilepsyadvocate.com to reserve you seat today.
Registration starts at 6:30, the program begins at 7:00pm.
Lend a Hand Horse Farm is one of Rhode Island's leading therapeutic riding facilities. The programs at Lend a Hand are designed to meet the needs of children and/or adults with physical, mental or social disabilites as well as those who are eager to learn about horse riding in a therapeutic environment.
They provide therapeutic riding in a safe, caring, natural farm environment, and treat all students with compassion and the necessary understanding to accomplish any given goal as a team.
Scholarships:
Congratulations to all EFMRI Scholarship Winners and a special thanks to our donors who have made the Scholarship Program a success and helped ease the increasingly heavy burden on education finances.
2007 Scholarship Winners
Nathanial Jannetti $1,000 Shannon McDermott Scholarship
Jennifer Caggiano $1,000 George Hauser Scholarship
Michelle Preston $500 James Lyons Scholarship
Jonathan Ozoonian $500 James Lyons Scholarship
2008 Scholarship Winners Matthew Knox $1,000 Shannon McDermott Scholarship
Jonathan Yunes $1,000 George Hauser Scholarship
Danielle Hettwer $500 Danielle Hettwer
Lauri Laurentano $500 James Lyons Scholarship
Shannon McDermott Scholarship sponsored by Patrick & Janet McDermott
George Hauser Scholarship and James Lyons Scholarship are sponsored by the Western Massachusetts Epilepsy Awareness Committee.
Coming Up - 2009 Scholarship:
Richard Bonasera $1,000
Robert Hannigan $1,000
Any questions or comments - please email us at info@efmri.org.
Take 2 minutes to fill out a confidential form to tell us more about yourself. This information will be used to help craft new programs, establish new support groups, hold community events and more.
Sign up for our ECommunity and talk to others in the community living with Epilepsy.
This Interest Group of eCommunities provides a serious place where people facing issues and concerns about living and dealing with seizure disorders or epilepsy can meet and exchange ideas, support and experience. Topics include "Parents Helping Parents," "Teen Group," "Help Forum," "The Lounge" and more. Click here to enter.
Epilepsy Awareness Wristbands
"Not Another Moment Lost to Seizures"
Help us raise Epilepsy Awareness and bring the condition into the social dialogue. The red wristband comes in one size and reads "Epilepsy Foundation MA & RI" and "not another moment lost to seizures" along with a light yellow flame on opposing sides.
To donate to the Foundation and purchase a batch of 12, click here.
All funds will go to back to the community through education, support and advocacy.
We Take Cars Too!
Are you thinking of selling or trading in that car, boat or RV? Why not donate it instead? By donating your car you could earn a charitable income tax deduction and help make a difference in the lives of people with epilepsy.
We will make all of the arrangement to pick up the vehicle at no cost to you. We can arrange to pick up most vehicles anywhere in the continental United States and Hawaii. We will also provide you with the necessary paperwork so you can claim a charitable income tax deduction.
For more information please call 877-EF-Cars-7 or 877-322-2777.
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